From a friend, "It sounds like the twitchy woman just likes to show off. I'm glad she is able to do such things, both physically and financially. But unless her audience just wants to live vicariously, it's not much of a contribution."
Susan, I have found that sharing photos of my travel gives people hope. Hope that they can travel in the future. Hope that they can continue to do the things they like to do. Hope that they can live well with PD after 17 + years. I get more positive responses from these posts, which you say are not much of a contribution, than any other posts. I usually throw in some travel tips for traveling with PD, which I will do in my next post.
I hope this helps you and your friend understand why I share my photos. It is not an ego thing at all.
Thank you for the explanation about your travel photos and posts. I just wish you did not have an audience that is limited to wealthy Los Angeles people. Yes, like it or not, the piece does read as egotistical to me and my friend. My beef is not with you. I have found many examples of spokespeople for Parkinson’s who are wealthy and are preaching to wealthy people. Even poor and average people get PD, you just don’t see them. I admire you for your work and attaining the position of the women’s voice in the Parkinson’s battle against time.
I encourage you to read an article that appeared this morning in USA Today titled “Why travelers are choosing Wellness Retreats.” https://www.usatoday.com/story/travel/2026/07/27/wellness-retreat-travel-reasons/90352850007/ It is very well written and although it points to what is probably a costly solution for the average person, it reads neither egotistically nor flighty and helps people with many different illnesses.
I have been an opinion writer for many years and have attained the big one, an opinion piece of mine was published in The New York Times. Other major newspapers have published my work. I, too, have had editors who have made my work better and people who disagreed with me. I am also a noted advocate for healthcare among other things and like you, just want to give people hope. For me, that includes rattling some cages sometimes.
Great photos, Sharon!! Have a wonderful vacation and enjoy the cruise!!!
Beautiful pictures! Thank you for sharing. I hope you're finding time to rest in between. Have fun and be safe!
From a friend, "It sounds like the twitchy woman just likes to show off. I'm glad she is able to do such things, both physically and financially. But unless her audience just wants to live vicariously, it's not much of a contribution."
Susan, I have found that sharing photos of my travel gives people hope. Hope that they can travel in the future. Hope that they can continue to do the things they like to do. Hope that they can live well with PD after 17 + years. I get more positive responses from these posts, which you say are not much of a contribution, than any other posts. I usually throw in some travel tips for traveling with PD, which I will do in my next post.
I hope this helps you and your friend understand why I share my photos. It is not an ego thing at all.
Sharon
Sharon,
Thank you for the explanation about your travel photos and posts. I just wish you did not have an audience that is limited to wealthy Los Angeles people. Yes, like it or not, the piece does read as egotistical to me and my friend. My beef is not with you. I have found many examples of spokespeople for Parkinson’s who are wealthy and are preaching to wealthy people. Even poor and average people get PD, you just don’t see them. I admire you for your work and attaining the position of the women’s voice in the Parkinson’s battle against time.
I encourage you to read an article that appeared this morning in USA Today titled “Why travelers are choosing Wellness Retreats.” https://www.usatoday.com/story/travel/2026/07/27/wellness-retreat-travel-reasons/90352850007/ It is very well written and although it points to what is probably a costly solution for the average person, it reads neither egotistically nor flighty and helps people with many different illnesses.
I have been an opinion writer for many years and have attained the big one, an opinion piece of mine was published in The New York Times. Other major newspapers have published my work. I, too, have had editors who have made my work better and people who disagreed with me. I am also a noted advocate for healthcare among other things and like you, just want to give people hope. For me, that includes rattling some cages sometimes.
Susan