National Advisory Council on Parkinson’s Research, Care, and Services meeting
Finally, a meeting that matters to all of us.
Primary prevention means reducing the chances of Parkinson's disease developing in the first place…. Dr. Michael Okun
On Tuesday, the National Advisory Council on Parkinson’s Research, Care, and Services met for the first time. Fortunately, the meeting was available for anyone to watch on-line and has been recorded in case you missed it. Unfortunately I could only watch the last few minutes but will go back and watch it when I can. If you want to watch it click here. Three more meetings are planned for this year on August 24(virtual), November 9 (in-person and virtual) and December 7 (virtual). I will give you the link before each meeting so that you can watch.
Dr. Michael Okun has summarized what was discussed at the meeting. Click on his name to read the entire post.
Sunday Morning with Jim O’Connell
This past Sunday, author Jim O’Connell and his wife, Connie, joined me for my Sunday Mornings webinar. Jim was diagnosed with PD nearly 20 years ago. Jim and Connie read a few chapters from his book Incurable Gifts and we talked about his journey with Parkinson’s. His warm sense of humor is evident in every chapter of the book. I think you will enjoy reading it.
The book is available on Amazon.*
Next on Sunday Mornings with Twitchy Woman
Sunday, July 12 at 1:00 PM ET, 10:00 AM PT
Several of our amazing Twitchy Women who attended the World Parkinson Congress for the first time last month will be joining me to talk about their experiences. What did they learn? What were some of the key takeaways from the Congress? Join us for a lively conversation about the WPC and what to look forward to in 2029 at the next WPC in Quebec City.
Have a great week!
*As an Amazon Associate, Twitchy Woman earns from qualifying purchases.
Really, Sharon? You wrote this about the National Advisory Council on Parkinson’s Research, Care, and Services meeting: "Finally, a meeting that matters to all of us." Michael Okun wrote "History was made today." Michael should know better. And your comment is offensive because you may mean that it matters to you, but you have never and will never speak for me and others. A government Advisory Council begins because it's an effective way to STOP progress. Advisory Councils are critical to halting progress. Think about it They will all sit around for many years and decide which committee they will be on in the Advisory Council (yawn). They will all sit around for about two years, telling themselves what a great thing they are doing for the poor Parkinson's patients. Trust me, Sharon, I have spent years watching how this works in Washington. It's been over 40 years ago since we were told a cure for Parkinson's was going to happen very soon. Government needs to listen to what the patients have to say rather than spending precious time waiting for the cure. I hope you all find it. Lives are in your hands now.